Neil O’Brien, MP for Harborough, Oadby & Wigston has welcomed today’s news that a revolutionary medicine will be made available to children with spinal muscular atrophy (SMA). The drug nusinersen, also known as Spinraza will be made available to the youngest and most severely-affected infants (SMA Type 1) immediately, followed soon by SMA Types 2 and 3.
This was an issue raised by Mr O’Brien at Prime Ministers’ Questions last month, where he pushed for an update and greater flexibility to allow for Spinraza to be made available.
Neil said, “This is very welcome news and will mean a lot to families across the country as well as my constituents Mark and Panna Wilson and their son Aadi from Oadby, who came to see me at a surgery to discuss this.
As well as raising this at PMQs I’ve also discussed it personally with the Health Secretary Matt Hancock MP to see what could be done, and I’m delighted that we’ve got the breakthrough that so many families were hoping for.”